Well another week has gone by and Miss Raylee is still not eating what she should on her own. They tried pulling her feeding tube and just seeing what she would do on her own and between her reflux and her being tired it was just to much. She going to have to have surgery and it is scheduled for Friday morning at 8:00. The surgery is to fix her reflux and to put in a g-tube. The reflux surgery is called the Nissen procedure, part of the stomach is wrapped around the lower end of the esophagus and stitched in place, reinforcing the closing function of the lower esophageal sphincter. Whenever the stomach contracts, it also closes off the esophagus instead of squeezing stomach acids into it. This prevents the reflux of gastric acid. The gastrostomy tube or g-tube is an alternate way to offer food and / or medicines. It also can be used to vent your her stomach for air or drainage. They say the g-tube could be there for 5 months or 5 years it just depends on how Raylee does eating. They say some kids do a lot better when they are able to eat solid foods.
As for me the protein in my urine has started to go down on its own so we were able to hold off on the biopsy. We start a few medicines to see if we could clear it up that way. We will retest in 6 weeks and see where we are at.
Please keep Raylee in your prayers.
Love,
Kyle & Jane
It has been four months since Jane was life flighted to Denver and it seems like much longer ago! It is such a wonderful place to be(PSL)as the Doctors and nurses have been wonderful. It is educational and eye opening into the many blessings we all have. We Pray that this surgery will allow a quicker homecoming for Raylee, and we are looking So forward to that! Aunt Sarah has STILL not seen Raylee. Please keep all of Raylees support TEAM in your prayers-HE hears us! Grandma Pat
ReplyDeleteI will continue to keep Raylee and all of you in my prayers. I am sorry to hear that things are still so tough for Raylee. I am glad Jane's numbers are coming down, you are all so strong. I will light a candle for Raylee.
ReplyDeleteLove, Valerie
Sorry to hear Raylee has to have another surgery. As hard as it is, hopefully it will enable her to come home sooner!! Miss you guys and can't wait to see you at Christmas!!!
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